Please Help Me to Support Linda and FARA

September 12th, 2010 by Chris

When we first moved to Cazenovia, one of the first people I met at my new job was Linda Johnson. She is such a warm, friendly, funny person, and we quickly became friends with her and her family. On my first trip for Sensis, Linda politely asked if she could lean on my arm for support as we walked up and down stairs. Later, I learned that Linda has Friedreich’s Ataxia. This inherited disease causes the nerves of the body to deteriorate. Linda can walk with difficulty, but it gets a little more challenging every day. In addition, speech gets slurred, finger dexterity suffers, and other serious complications can develop as time goes on.

In 2008, we cheered Linda on as she rode her bike from Sacramento to Las Vegas. The event took two weeks, and they traveled 650 miles to raise money for the Friedreich’s Ataxia Research Alliance (FARA), as part of Ride Ataxia II. It was inspiring to watch her complete the challenge, showing everybody that she was not going to let her condition hold her back from what she wanted to do in life.

On October 10th, I will be participating in Ride Ataxia Philadelphia. Rather than 650 miles, I will be riding a mere 50 miles over the crazy hills of south-eastern Pennsylvania. Our team, “Linda’s Life Savers”, has a goal of raising $10,000 for FARA. My personal goal is $500. Please help me support Linda and FARA by taking the time to donate a few dollars to help find a cure for this disease.

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.


4 Responses to “Please Help Me to Support Linda and FARA”

  1. Linda Johnson Says:

    You guys are stand-up Class A! This is a big commitment, and I so appreciate your help with this quest for a cure! Thank you! Thank you! Thank you! And thanks to any of your readers for donations and/or good wishes!

  2. Brenda Wilczynski Says:

    Thanks for doing this, Chris. We will be glad to sponsor you @ $1.00 per mile. Best wishes on your biking! Aunt Bren and Uncle Ray

  3. Bill Ruhsam Says:

    Way cool. There wasn’t an option on the webpage so I’ll tell you: I *stopped* giving money to Annie & Mike’s pet walkathon because of their recurring habit of pestering me with leaflets and emails. I’m happy to support, but I don’t want to get bombarded by this organization. Please pass this along.

  4. Chris Says:

    Bill: Thanks for the support, I’ll see what I can find out about their privacy policy.